Support Groups

2025 Chiari Support Group Schedule

//2025 Chiari Support Group Schedule

Our Chiari Support Group provides a supportive environment for individuals living with Chiari malformation, their families, and caregivers. This group offers a space to connect, share experiences, and gain insights from others who understand the challenges of living with Chiari. Whether you’re seeking guidance, education, or community, this group is here to support you.

When We Meet: The first Wednesday of each month
Time: 6:00 - 7:00 PM EST
Where: Virtual (via Zoom) – Registration links are provided below.

Each session features discussions led by medical professionals, guest speakers, and individuals with lived experiences, covering essential topics to help navigate life with Chiari.

See below to register and view upcoming meeting topics.

2025 Virtual Chiari Support Group Meeting Schedule

UPCOMING MEETINGS:

MARCH 5, 2025
Topic: Coming Soon
Led by: Coming Soon
Location: Virtual Only

PREVIOUS MEETINGS:

FEBRUARY 5, 2025
Topic: Chiari Awareness and Advocacy: Ray D’Alonzo’s Journey
Led by: Ray D’Alonzo, author of Contents Under Pressure: One Man’s Triumph Over Chiari Syndrome.
Location: Virtual Only

Be sure to bookmark this page for all future meeting announcements! Don’t forget to fill out the form on our General Support Group page to be added to our email list and stay updated on upcoming meetings.